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Long Term Conditions Works Stream

The Better Together Long Term Conditions Work Stream will be taken forward by Better Together in partnership with the Long Term Conditions Collaborative and Long Term Conditions Alliance Scotland. The work stream aims to build on the good work already happening. 

As the national GP and In-patient experience surveys will capture information on people’s experience of long term conditions, this work stream will not include a further national data collection exercise.  Instead, a topic report on long term conditions from the data gathered within the national surveys will be produced.

The Better Together Long Term Conditions work stream will contribute to culture change, by building capacity and capability of healthcare staff in gathering and using people’s experience to make improvements. The work stream will aim to embed people’s experiences of living with long term conditions within improvement work, via tests of change. It is anticipated that a Patient Engagement and Patient Experience Toolkit be developed as part of the wider Better Together programme and disseminated widely.  This will collate and build on/sign-post to the approaches already developed nationally, internationally and locally.

Definition of Work Stream

The aim of this work stream is to improve the experience of people living with long term conditions.  This will be achieved through the following objectives:

Objectives:
• To publish and disseminate a National Patient Experience Topic Report on Long Term Conditions
• To build capacity and capability of healthcare staff in gathering and using people’s experience to make improvements.
• To embed people’s experiences of living with long term conditions within improvement work via test projects; and to test patient experience approaches
• To identify tools, approaches and case studies to contribute to an Engagement and Experience Toolkit
• To produce a report which provides an overview of the findings from the above work.

Timescale
June 2010 – March 2011

Steering Group
A Steering Group will be established to oversee this work.